Yes, I Blog About My Health For Attention.

Before blogging, I used to shy away from talking about my chronic illnesses. Who wants to sit there and listen to me talking about hospital appointments, about how I was crying on the bathroom floor at 3am and how many tablets I’m on and what they do.

It wasn’t until I realised how powerful talking about chronic illnesses can actually be, that made me want to talk about it more. If you don’t like the fact I talk about them, I’m not sorry. It says a lot about you than it does about me.

I am NOT a chronic illness sufferer. My name is Brooke, and I happen to have chronic illness. Do NOT define me by my health.

When I put up my first post about all my illnesses, I had a LOT of messages from my friends, family, and even people I had never spoken to before, all telling me how they never knew of my conditions, or what they even were.

I have multiple illness. Some of which are very common, and some are more uncommon.

Lets get into some numbers shall we?

  • 250,000 people in the UK suffer from M.E/CFS
  • 1 in 10 women of reproductive age in the UK suffer from endometriosis.
  • 1 in 500 people in the UK suffer from EDS
  • 1 in 3,800 people in the UK suffer from RSD/CRPS
  • 10,000,000 people in the UK suffer from Raynauds
  • 14,000,000 people in the UK suffer from Chronic Pain Syndrome

That’s some bloody big numbers. So why is it that when I was diagnosed, I had ZERO idea what the majority of them were?

Still to this day I have to tell TRAINED DOCTORS what my conditions are. That’s not cool.

Why is it that people still have zero idea on what my chronic illness are? It’s because the majority of people who are diagnosed are too sick to tell you.

I now want to be the voice for the people who are bed bound, the people who are infertile, the people who can’t walk, the people who can’t eat, the people who haven’t worked in years. I want to speak out for them, and if that’s a problem for you, then please block me. I would love you to.

I’ve been told I’m attention seeking when I tell people what my illness are, and how they affect me daily. Yes. I am attention seeking. I’m seeking for some fucking recognition of what my illness are.

Writing posts about my illness’ have helped others out. I have received emails off of my readers, asking for help, and if I can help in any way, then I bloody well will.

People are screaming in pain with no diagnosis, and if my ‘attention seeking’ posts help them speed up the process of getting someone diagnosed or even tell them ways to try that I’ve found help control symptoms, then I’ve helped someone who is just like myself.

Yes. I am attention seeking. I will scream it out in the street. I, Brooke Clarke, am an attention seeker. I’m seeing for some help, and I’m seeking for others that I can help.

 

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52 thoughts on “Yes, I Blog About My Health For Attention.

  1. I have a close friend who suffers from Endo, and I know how very real this is and how terrible it has been for her. Many people (doctors esp!) seem in the dark about this, so I commend you for shedding light into an illness that people aren’t aware of and don’t know much about.

    Liked by 3 people

  2. Hi, I am sorry that the doctors have not been able to help you. Allopathy has very few medications for this condition. I do not know which continent you come from, but can you try ayurvedic or even naturopathy. Please take good references before you go to any of such specialists. Because for this condition you need some body experienced in alternative medicine.

    Liked by 3 people

      1. I am not sure about acupuncture but naturopathy and ayurveda helps. In india, it helps some women. My known gynaecologist friends do give allopathy but I am not fond of those medications.

        Liked by 1 person

  3. Haters will hate, cant change that…but you can change/help the life’s of other sufferers by writing about illness, and your sadly long experience.
    Carry on being you and sod the minority of small selffish narrow minded people, who frankly are only out for themselves anyway, and would never help another person unless it had something in it for them.
    Sadly we never know whats around the corner, and these could be the people that need help and adviice on chronic illness in the future. Love you xx

    Liked by 2 people

  4. I think it’s really great that you talk so openly about your health and chronic illness. It’s really important for those who can relate. I feel really ashamed that I have never heard about some of your illnesses even though I have education from health sector, I blame our school. They should teach more about the ‘rare’ chronic diseases too, not just about dementia,epilepsy etc. Sorry for such a long comment, keep doing what you do and talking about these things. Fuck the haters! ❤️

    Liked by 2 people

  5. YES BROOKE! I love this. Health is so important and chronic illnesses affect SO MANY PEOPLE, yet nobody is allowed to talk about it? If anyone mentions it, they’re complaining? My uncle was in and out of hospitals and passed from doctor to doctor for 2 years before they identified his illness (I think it’s Crohns, but there was something about shingles too) because so many chronic illnesses are just overlooked. I think what you’re doing calling attention to it is not just brave – it’s necessary xx

    Liked by 2 people

    1. Thank you so much!!! I always feel like I’m complaining whenever I mention the illnesses, but they’re apart of my life, and since they’re not as known as they should be, I should bloody be allowed to tell the world about them! It’s scary to think how long people are waiting before they get a diagnosis of whats causing the symptoms. A lot of them don’t have treatments or cures, but when you’ve been seen time and time again by doctors saying there’s nothing wrong with you, it starts making you feel insane! xxx

      Like

  6. Our health is so important and I think for other people who are going through similar diagnosis it’s great to have people speak out about it. I also have endo so that’s the only one I know much about but at the time going through it I’d never heard of it! x

    Liked by 1 person

    1. I had only really ever heard of endo a few times since a few of my friends have it, but I didn’t really know any details or anything! It’s scary how they can also leave you with a diagnosis, but not tell you that much about what is going on! Hows everything on the endo side now? x

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  7. This was so brave of you to write and I feel like a weight has been lifted knowing I’m not the only one made to feel like I’m wallowing/complaining about my chronic Illness’s. I’ve been undiagnosed for nearly 9 years now and people need to understand that it’s not as simple as walking into the doctors once and being told what is wrong and what will be done next. Your life is somewhat taken away from you and all you want is an answer not to be made feel silly not only by strangers but sometimes your own doctors. Keep speaking up about what you are going through and spreading awareness, we are all behind you! 💗💗

    Liked by 1 person

    1. Thank you so so much! The majority of the time, I would have to do my own research, and then go to the doctor and say ‘hey what about this?’ and then 9/10 it is usually that! I really hope that you can get a diagnosis soon. It made me feel like I was insane not knowing what was wrong! xxx

      Liked by 1 person

  8. Same! We are scared to often tell doctors what we find as we look like crazy people when we feel like we have more of a chance finding out what it is than they do. Thank you so much, that means allot, I just want a name even if it doesn’t end the pain. It’s nice knowing I’m not the only one who has gone through this 💗 hope you’re having a lovely day!

    Liked by 1 person

  9. I think it’s awesome that you’re doing this not only for yourself but for others as well. That’s so kindhearted of you to use the platform that you have to be the voice for so many people. You keep doing you, girl!😙

    Liked by 2 people

  10. Mate, I was the same when I got diagnosed with ME! I had no idea what it was, which is not cool in itself. Anyone who is having a go at you for attention seeking, they baffle me! It’s people like you, speaking out, that helps fellow sufferers and you act as a voice for those too scared to say what they feel…
    Don’t change Brooke, love you dude xxx

    Liked by 2 people

  11. Very interesting! I have a different sort of condition – liver and blood disorders – and I also blog about it. It’s interesting because people are really fascinated in illness, particularly ‘healthy people’, but they are also the first to roll their eyes sometimes because they can’t relate … good luck with your journey x

    Liked by 2 people

  12. People can piss off. I’m old and over the years I’ve learned to just try and brush off the negativity. You write about whatever the hell you want to write. I have a crazy rare autoimmune illness that only affects 1 per 1,000,000 people of the UK and United States populations combined. I used to have a youtube channel talking about it but it got exhausting to do. People would ask me for medical advice and I am not a doctor so I took a long break from it. It’s cathartic to write about your health. You do you.

    Liked by 1 person

    1. Thank you so much! I get asked for so much help (including peoples medication!), and even though I want to help, I’m no way near qualifying to give it out! I don’t want to end up making someone worse because I’ve said that this way has helped me! People always ask how we are, and then when we tell them, they say ‘oh it can’t be that bad’ or ‘I wish I was ill so I didn’t have to work!’! Drives me insane!

      Liked by 1 person

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