Before blogging, I used to shy away from talking about my chronic illnesses. Who wants to sit there and listen to me talking about hospital appointments, about how I was crying on the bathroom floor at 3am and how many tablets I’m on and what they do.
It wasn’t until I realised how powerful talking about chronic illnesses can actually be, that made me want to talk about it more. If you don’t like the fact I talk about them, I’m not sorry. It says a lot about you than it does about me.
I am NOT a chronic illness sufferer. My name is Brooke, and I happen to have chronic illness. Do NOT define me by my health.
When I put up my first post about all my illnesses, I had a LOT of messages from my friends, family, and even people I had never spoken to before, all telling me how they never knew of my conditions, or what they even were.
I have multiple illness. Some of which are very common, and some are more uncommon.
Lets get into some numbers shall we?
- 250,000 people in the UK suffer from M.E/CFS
- 1 in 10 women of reproductive age in the UK suffer from endometriosis.
- 1 in 500 people in the UK suffer from EDS
- 1 in 3,800 people in the UK suffer from RSD/CRPS
- 10,000,000 people in the UK suffer from Raynauds
- 14,000,000 people in the UK suffer from Chronic Pain Syndrome
That’s some bloody big numbers. So why is it that when I was diagnosed, I had ZERO idea what the majority of them were?
Still to this day I have to tell TRAINED DOCTORS what my conditions are. That’s not cool.
Why is it that people still have zero idea on what my chronic illness are? It’s because the majority of people who are diagnosed are too sick to tell you.
I now want to be the voice for the people who are bed bound, the people who are infertile, the people who can’t walk, the people who can’t eat, the people who haven’t worked in years. I want to speak out for them, and if that’s a problem for you, then please block me. I would love you to.
I’ve been told I’m attention seeking when I tell people what my illness are, and how they affect me daily. Yes. I am attention seeking. I’m seeking for some fucking recognition of what my illness are.
Writing posts about my illness’ have helped others out. I have received emails off of my readers, asking for help, and if I can help in any way, then I bloody well will.
People are screaming in pain with no diagnosis, and if my ‘attention seeking’ posts help them speed up the process of getting someone diagnosed or even tell them ways to try that I’ve found help control symptoms, then I’ve helped someone who is just like myself.
Yes. I am attention seeking. I will scream it out in the street. I, Brooke Clarke, am an attention seeker. I’m seeing for some help, and I’m seeking for others that I can help.