After a 4 night admission to hospital, I’m home!
As promised in my Another Effing Update post, it’s time to update you all on whats going on!
If you read my Recent Hospital Stay Update, you’ll know I didn’t have the best experience there, and actually came out worse than I went in!
I went to see a gynaecologist in Cheltenham (It should only take an hour to get there, but ended up taking 2 hours) to get a second opinion. We discussed lots of different things that may still be causing the pain and the no eating and drinking.
He told me he thought it was post operative complications, and that basically when I had my surgery, the surgeon exposed all the nerves in my stomach, making all the pain heightened and thats why I was in so much pain after eating and drinking.
He then asked me to stick my tongue out, and admitted me straight away. He was pretty much DISGUSTED at how the other hospital let me out, as I was super dehydrated.
Luckily, mum and I had a feeling he would keep me there overnight, and we packed a bag to take with us just in case, and thank the lord that we did! This is something we’ve had to learn to do now! I even have a few bits and bobs that stay in bags just in case I fall ill again, and have to grab overnight things.
He put me on 6 bags of fluids. First one went through for 2 hours, second one 4 hours, third 6 hours, and the rest for 8 hours.
He also told me to stick to a low fibre diet, since he didn’t want my gut doing any more extra work than it needed too. Turns out, everything I had been eating was really high in fibre…
He started me on Buscopan (helps with IBS and stomach pain) , and Amitriptyline (an antidepressant that helps with nerve pain), to help with everything. We spoke about having monthly injections called Prostap also. This was the one that scared me the most. Prostap not only helps with endometriosis, but also is used to treat prostate cancer, meaning I’d likely feel pretty shitty, and my eyebrows and eyelashes would fall out. The only silver lining to it was that it could help dramatically, and that it would also remove all body hair and the hair on my head. No shaving my bits and pieces, and I’ve been wanting to shave my head for a while now anyway!
He came around to do the injection in the morning, but I had to phone my insurance first to see if they were happy for me to have these, since it wouldn’t be a one off, and that it costs a shit ton. Luckily they agreed.
The next morning, I couldn’t believe how much better I felt just from the fluids, and introducing the new medications. This is when we decided it would be best to hold off from having the Prostap, but if I felt like I wanted it/needed it, then he would be happy to re-prescribe it to me.
The next couple of days, I started feeling better and better. I was managing to walk to the toilet on my own, dress myself, have a shower by myself and even was allowed to go on day release for 2 hours.
Since I have a small build anyway, my systolic blood pressure (top number) is usually anywhere between 90 to 100, but it was rare that it even hit 90, and was closer to 70 the whole time I was in there, despite having fluids.
I asked to go home on Friday or Saturday (day 2 or 3) I believe, but my doctor wanted me to stay in until at least Monday so that I could have a CT scan done. He originally said that I could stay for fluids, go home, and come back for my scan, but since it wasn’t my local hospital, he said it would be easier for me to wait until Monday to have it whilst I was an inpatient, and if it showed anything, then I would have to stay in longer.
Monday arrived and this is the first time I was actually nervous for one of my scans. I usually never get worried by them, but this time I had a feeling in my waters that something would show something bad. Yes, it would be positive for the scan to be clear, but I always get slightly hopeful that my scans and tests will show something for them to be able to treat quickly. For those who are healthy, this sounds insane.
I had to fast for 6 hours prior to my scan, which wasn’t difficult for me since I still wasn’t that keen on food just yet. The downside is that I had to drink 1 litre of contrast in an hour. My stomach still couldn’t tolerate liquids well, and in all honesty, it tasted like shit. If I wasn’t already feeling nauseous as it was, aniseed flavoured contrast isn’t the best thing to be having. For anyone who’s has to have this, I chewed gum, held my nose, drank as much as I could and chewed the gum whilst my nose was still being held. I ended up going through 8 pieces of gum, just to get it down me. It also helped with the nausea, so win win.
It was the first time I had also had the IV dye contrast. The oral contrast was to show my bladder, stomach, and intestines better, and the IV contrast was to show off all the blood vessels and to show highlight the different organs such as the brain, spine, liver and kidneys.
If they don’t warn you before (they should do, but didn’t when my mum had hers), you’ll get an extremely hot flush, and it’ll feel like you’ve wet yourself. Weirdest feeling ever.
The scans were all clear luckily, and I was able to finally be discharged! I rang my mum for her and my uncle to come pick me up, and by the time they had arrived, I was washed, dressed and all packed up, ready to leave ASAP.
I’m now home and I couldn’t be happier. The staff at the hospital were incredible. I have honestly never had such amazing care whilst I’ve been in hospital. The nurses were amazing and actually wanted to have normal conversations with you, the dinner ladies always made sure that if I wanted tea or coffee, and always were so polite and helpful with my diet, and even the cleaners were amazing! Big shoutout to the cleaner who sat down with me as we tried to stalk her brother who had blocked her on Facebook.
My biggest shoutout of them all goes to my doctor, Dr Philip Kaloo. If anyone has gynae issues, and lives in the U.K, definitely see him. He has been the biggest help of them all, and has finally got me thinking that I can and will recover from the complications, and that there is a way to manage this all.
He came in and saw me every morning, and then rang every evening to see if I was okay. I have NEVER met a doctor who made me feel more human, and actually helped with solving the problem straight away. I owe him so much.
Now I’m home, I’ve been told to still keep to a low fibre diet (which turns out is a LOT harder than I thought. Fuck diets), and keep on top of pain killers and all my medication.
The pain isn’t gone, and it never will be. Thanks endometriosis! But, he’s managed to be one of the only ones to help me in such a massive way.
Also, another big personal win is that I’m getting so much better whilst having my bloods taken and having an IV port placed. It used to take them an hour to even be able to come near me since I would be kicking and screaming (I literally cry my eyes out and have accidentally kicked a doctor who was trying to pin me down to have a drip inserted), but this time it took him not even 5 minutes. I also got told by a previous doctor that he had done his job for 20+ years, and I was the worst needle phobic person he had ever seen. I don’t think I I’ll ever be okay with having blood work done, but at least it doesn’t take up half of their day. Yes I have piercings and tattoos, and yes I am 20 years old, but blood tests and drips are still scary as shit.
Thank you to everyone at the hospital and a massive thank you to my uncle who drove my mum up to see me, since they had to travel for 3 hours every time in total.
Another thank you is to all of you guys. Again, I am completely blown away by how kind and supportive you’ve all been. You guys definitely keep me motivated and positive, and most importantly, sane!
Heres to hoping that this is my last admission for this year! 2017, you’ve been shit so far. Show me some light please!
All my love